The Microbe Discovery Project

A patient-led initiative supporting Dr. Ian Lipkin & Dr. Mady Hornig's ME/CFS research
at the Columbia University Center for Infection and Immunity, Mailman School of Public Health, New York.

CII’s ME/CFS Monster Study: Microbes, Immunity & Complex Data

CII’s ME/CFS Monster Study: Microbes, Immunity & Complex Data

Dr. Ian Lipkin   Columbia University – Center for Infection and Immunity has seriously upped the ante on the initial microbe discovery project in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Their impressive, rigorous new study could point the way to diagnostic tests, and even treatments – but first they need the funds to complete the work. ME/CFSRead more about CII’s ME/CFS Monster Study: Microbes, Immunity & Complex Data[…]

News round up: Momentum is building for ME/CFS!

News round up: Momentum is building for ME/CFS!

Our Microbe Discovery Project team had some time unplugged through the holiday period but while we were away momentum was building in the ME/CFS research world! Straight off the bat there was some big news from Norway just before Christmas! Drs. Fluge and Mella et all AKA the Norwegian team, published a paper titled ‘Metabolic profiling indicates impaired pyruvate dehydrogenase function in myalgic encephalopathy/chronicRead more about News round up: Momentum is building for ME/CFS![…]

‘Unrest’ is set to show millions the reality of ME/CFS

‘Unrest’ is set to show millions the reality of ME/CFS

‘Unrest’ – a documentary about ME/CFS is poised to reach millions and raise awareness like never before. ‘Unrest’ (formerly known as ‘Canary in a Coalmine’), the highly anticipated documentary film directed by Jennifer Brea, has received widespread praise and recognition. It premiered to the world at the 2017 Sundance Film Festival and claimed the prestigious Special Jury Award inRead more about ‘Unrest’ is set to show millions the reality of ME/CFS[…]

Alzheimer’s and Pathogens: Changing how we understand the microbiome

Alzheimer’s and Pathogens: Changing how we understand the microbiome

The following is a summary with excerpts from Aeon’s “A bug for Alzheimer’s?” which discusses how microbes may be implicated in a chronic brain disease. It may seem not so relevant to ME/CFS, but CII’s own Dr. Mady Hornig discusses the strategies and challenges associated with linking microbiome differences or infections (even infections outside the brain!) to complex brainRead more about Alzheimer’s and Pathogens: Changing how we understand the microbiome[…]

2016 Year in Review from Ian Lipkin and CII

2016 Year in Review from Ian Lipkin and CII

Season’s Greetings from Ian Lipkin and the Center for Infection & Immunity “None of this would have been possible without your support” Doctor Ian Lipkin covered “the greatest hits of 2016” including ME/CFS, tick-borne diseases, SARS, and tilapia in this new video from CII. ME/CFS Research Updates The CII team has now collected thousands ofRead more about 2016 Year in Review from Ian Lipkin and CII[…]

New Parkinson’s disease study is a big step forward in microbiome science

New Parkinson’s disease study is a big step forward in microbiome science

New Parkinson’s disease study A big step forward in microbiome science by Simon McGrath New research on Parkinson’s disease, provides the best evidence yet that the gut microbiome can trigger inflammation in the brain, causing disease. Mady Hornig thinks a microbiome-brain link might play an important role in ME/CFS. The new study, published in theRead more about New Parkinson’s disease study is a big step forward in microbiome science[…]

Send the gift of ME/CFS research to someone you care about this Christmas

Send the gift of ME/CFS research to someone you care about this Christmas

Tis the season! Help send a Christmas snowball of funds for ME/CFS research to Drs. Ian Lipkin and Mady Hornig at Columbia University CII in New York this Holiday Season Biomedical research into ME/CFS is a critical and crucial need. People with this illness all over the world are in many ways refugees within health care systems. Understanding is severely lackingRead more about Send the gift of ME/CFS research to someone you care about this Christmas[…]

NIH ME/CFS Funding Dollars Increase – the latest developments!

NIH ME/CFS Funding Dollars Increase – the latest developments!

A lot has happened at the National Institutes of Health recently regarding ME/CFS research, and it’s past due for a round up. Firstly, in mid October the NIH announced it had awarded seven administrative supplement grants resulting from a Notice of Availability that was issued in April 2016. These enabled NIH-funded projects to expand the collectionRead more about NIH ME/CFS Funding Dollars Increase – the latest developments![…]

IACFS/ME Conference: Compilation round up of Coverage.

IACFS/ME Conference: Compilation round up of Coverage.

  The 12th International Association of CFS/ME Biennial Conference event is now over. Cort Johnson tweeted a storm for days! Phoenix Rising also managed to send out great quality tweets. Bit by bit, coverage has been coming through and we hope more articles will be forthcoming. List of links to coverage so far You can still find theRead more about IACFS/ME Conference: Compilation round up of Coverage.[…]

NIH moving at bureaucratic pace while ME/CFS metabolomics findings get hotter!

NIH moving at bureaucratic pace while ME/CFS metabolomics findings get hotter!

  There has been another quick run of funding and research news in the ME/CFS community. Some frustrating, some hopeful…  Bureaucracy While so many patients remain redundant from life and suffering without appropriate care and support, bureaucracy is in no hurry. Dr. Francis Collins Director of the NIH has responded to a recent Congressional letter with no new information, exceptRead more about NIH moving at bureaucratic pace while ME/CFS metabolomics findings get hotter![…]

Mady Hornig’s Speech at New York ME/CFS #MillionsMissing Protest

Mady Hornig’s Speech at New York ME/CFS #MillionsMissing Protest

In the first #MillionsMissing protest in New York City – they chanted “History will recall HHS did nothing at all”. Placards read ‘End the Ignorance! Start the Education’ and the crowd cried out for funding… People with ME/CFS, their families, caregivers, friends and allies gathered at the Federal Plaza to protest and make speeches in New York City. 25 protestsRead more about Mady Hornig’s Speech at New York ME/CFS #MillionsMissing Protest[…]